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Facial Palsy, Congenital, with Ptosis and Velopharyngeal Dysfunction

OMIM ID:

autosomal dominant

Facial Palsy, Congenital, with Ptosis and Velopharyngeal Dysfunction

Alternate Names

FPVEPD

Defective Genes

TUBB6

Clinical Characteristics

Ocular Features

The singular ocular feature found in this condition is congenital bilateral non-progressive ptosis which may improve to some extent with age.  Patients usually compensate with a chin up posture.  A mild paresis of upgaze and some weakness of the orbicularis oculi muscles has been described in the index case.  Ocular motility is otherwise normal and Bell’s phenomenon is usually present. 

Systemic Features

Patients have a wide uvula, absent or decreased gag reflexes, and rhinophonia aperta.  Symptoms are nonprogressive but may improve with age or therapy.  No other skeletal, neurologic, or psychomotor anomalies have been reported.

Genetics

Inheritance

A single 5 generation family has been reported.  The transmission pattern is consistent with autosomal dominant inheritance.  Heterozygous missense mutations in the TUBB6 gene (18p11.21) are responsible for this condition.

Pedigree

Autosomal dominant

Autosomal dominant disorders require only one mutation for the disease to be expressed.  Since an affected parent has two chromosomes, only one of which has the mutant gene, parents can expect that half (50%) of their children will receive that one and inherit the disease.  It is common for individuals that inherit the mutation, however, to not have evidence of the disease (nonpenetrance).

Image
Sample pedigree of autosomal dominant inheritance

Autosomal dominant inheritance leads to a vertical pattern of transmission

Treatment & Management

Some patients benefit from nasopharyngeal surgery to improve swallowing and speech.  Ptosis surgery can also be helpful.

Selected Resources

Web Resources

Publications

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A TUBB6 mutation is associated with autosomal dominant non-progressive congenital facial palsy, bilateral ptosis and velopharyngeal dysfunction

PubMedID: 29016863