Marfan Syndrome Clinical CharacteristicsOcular Features: Marfan syndrome typically has skeletal, ocular and cardiovascular abnormalities. The globe is elongated creating an axial myopia and increasing the risk of rhegmatogenous retinal detachments. Ectopia lentis is, of course, the classical ocular feature and is often if not always congenital with some progression. The lenses most frequently dislocate superiorly and temporally and dilating the pupils often reveals broken and retracted lens zonules. Phacodenesis and iridodenesis are commonly present even in the absence of evident lens dislocations. Cataracts develop several decades earlier than in unaffected individuals. The cornea is generally several diopters flatter than normal and there is an increased risk of open angle glaucoma. There is considerable clinical variation among patients. Systemic Features: Patients with the Marfan phenotype are usually tall with disproportionately long limbs (dolichostenomelia) and digits (arachnodactyly). Patients frequently have scoliosis or kyphoscoliosis. The joints are lax and hyperflexible although contractures can also occur. The sternum is often deformed, either as a pectus excavatum, or sometimes pectus carinatum. The hard palate is high and narrow resulting in crowding of the teeth and maloccclusion. The defect in fibrillin is responsible for the weakness in connective tissue that leads to frequent cardiac valve malfunction, especially insufficiency of the aortic valve resulting from aortic dilatation, tear, and rupture. The latter is often life-threatening as aortic dissection can be fatal. Mitral valve prolapse is seen as well. Cardiovascular disease is primarily responsible for the shortened life expectancy in this disease, more pronounced among males. GeneticsAs many as 25% of cases are caused by new mutations, but familial cases usually follow an autosomal dominant pattern of inheritance. Autosomal recessive inheritance is claimed for several individuals in a consanguineous Turkish family. Mutations in the fibrillin-1 gene (FBN1) on chromosome 15 (15q21.1) are considered responsible for the typical phenotype. The exact nature of the fibrillin defect is unknown but the result is a generalized weakness in connective tissue. The same gene is mutant in the autosomal dominant form of the Weill-Marchesani syndrome (608328) which is allelic to the Marfan syndrome. Mutations in FBN1 have also been found in cases with isolated autosomal dominant ectopia lentis (129600). Pedigree: Autosomal dominantTreatmentTreatment Options: Isometric exercises such as weight lifting should be avoided as should contact sports in which blunt trauma to the chest may occur because of the weakened aortic wall due to cystic changes that predispose the athlete to aortic dissection. A dislocated and/or cataractous lens may need to be removed from the visual axis, and, of course, periodic retinal examinations for retinal holes and retinal detachments should be made. Beta-adrenergic blockade reduces the risk of aortic dilatation and improves survival. Pravastatin has been reported to reduce aortic dilation in marfan mice. ReferencesArticle Title: Evidence of aortic dissection and Marfan syndrome in a mummy from the Capuchin Catacombs of Palermo, Sicily Panzer S, Thompson RC, Hergan K, Zink AR, Piombino-Mascali D. Evidence of aortic dissection and Marfan syndrome in a mummy from the Capuchin Catacombs of Palermo, Sicily. Int J Paleopathol. 2018 Jun 8;22:78-85. PubMed ID: 29890445 Pravastatin reduces marfan aortic dilation McLoughlin D, McGuinness J, Byrne J, Terzo E, Huuskonen V, McAllister H, Black A, Kearney S, Kay E, Hill AD, Dietz HC, Redmond JM. Pravastatin reduces marfan aortic dilation. Circulation. 2011 Sep 13;124(11 Suppl):S168-73. PubMed ID: 21911808 Marfan's syndrome and related disorders--more tightly connected than we thought Gelb BD. Marfan's syndrome and related disorders--more tightly connected than we thought. N Engl J Med. 2006 Aug 24;355(8):841-4. PubMed ID: 16929000 A comparative histologic study of the fibrillin microfibrillar system in the lens capsule of normal subjects and subjects with Marfan syndrome Mir S, Wheatley HM, Hussels IE, Whittum-Hudson JA, Traboulsi EI. A comparative histologic study of the fibrillin microfibrillar system in the lens capsule of normal subjects and subjects with Marfan syndrome. Invest Ophthalmol Vis Sci. 1998 Jan;39(1):84-93. PubMed ID: 9430549 The Marfan syndrome locus: confirmation of assignment to chromosome 15 and identification of tightly linked markers at 15q15-q21.3 Dietz HC, Pyeritz RE, Hall BD, Cadle RG, Hamosh A, Schwartz J, Meyers DA, Francomano CA. The Marfan syndrome locus: confirmation of assignment to chromosome 15 and identification of tightly linked markers at 15q15-q21.3. Genomics. 1991 Feb;9(2):355-61. PubMed ID: 2004786 The eye in the Marfan syndrome Maumenee IH. The eye in the Marfan syndrome. Trans Am Ophthalmol Soc. 1981;79:684-733. Review. PubMed ID: 7043871 Ocular manifestations in the Marfan syndrome and homocystinuria Cross HE, Jensen AD. Ocular manifestations in the Marfan syndrome and homocystinuria. Am J Ophthalmol. 1973 Mar;75(3):405-20. PubMed ID: 4633235 Read more about Marfan Syndrome
Evidence of aortic dissection and Marfan syndrome in a mummy from the Capuchin Catacombs of Palermo, Sicily Panzer S, Thompson RC, Hergan K, Zink AR, Piombino-Mascali D. Evidence of aortic dissection and Marfan syndrome in a mummy from the Capuchin Catacombs of Palermo, Sicily. Int J Paleopathol. 2018 Jun 8;22:78-85. PubMed ID: 29890445
Pravastatin reduces marfan aortic dilation McLoughlin D, McGuinness J, Byrne J, Terzo E, Huuskonen V, McAllister H, Black A, Kearney S, Kay E, Hill AD, Dietz HC, Redmond JM. Pravastatin reduces marfan aortic dilation. Circulation. 2011 Sep 13;124(11 Suppl):S168-73. PubMed ID: 21911808
Marfan's syndrome and related disorders--more tightly connected than we thought Gelb BD. Marfan's syndrome and related disorders--more tightly connected than we thought. N Engl J Med. 2006 Aug 24;355(8):841-4. PubMed ID: 16929000
A comparative histologic study of the fibrillin microfibrillar system in the lens capsule of normal subjects and subjects with Marfan syndrome Mir S, Wheatley HM, Hussels IE, Whittum-Hudson JA, Traboulsi EI. A comparative histologic study of the fibrillin microfibrillar system in the lens capsule of normal subjects and subjects with Marfan syndrome. Invest Ophthalmol Vis Sci. 1998 Jan;39(1):84-93. PubMed ID: 9430549
The Marfan syndrome locus: confirmation of assignment to chromosome 15 and identification of tightly linked markers at 15q15-q21.3 Dietz HC, Pyeritz RE, Hall BD, Cadle RG, Hamosh A, Schwartz J, Meyers DA, Francomano CA. The Marfan syndrome locus: confirmation of assignment to chromosome 15 and identification of tightly linked markers at 15q15-q21.3. Genomics. 1991 Feb;9(2):355-61. PubMed ID: 2004786
The eye in the Marfan syndrome Maumenee IH. The eye in the Marfan syndrome. Trans Am Ophthalmol Soc. 1981;79:684-733. Review. PubMed ID: 7043871
Ocular manifestations in the Marfan syndrome and homocystinuria Cross HE, Jensen AD. Ocular manifestations in the Marfan syndrome and homocystinuria. Am J Ophthalmol. 1973 Mar;75(3):405-20. PubMed ID: 4633235
Cornea Plana Clinical CharacteristicsOcular Features: Enlargement of the cornea with flattening is characteristic of cornea plana although corneal diameters vary widely. Corneal thinning may be present. The mean corneal refraction value at the horizontal median has been measured at 37.8 D for the dominant form (CNA 1) of the disease, compared with 29.9 D for the recessive form (CNA 2) and 43.4 D for controls accounting for the hyperopia found among many patients. The limbal margin may be widened with blurring of the corneolimbal junction. Recessive cases can often be distinguished from the dominant ones by the presence of a central 5 mm area of thickening and clouding. Recessively inherited cases are also more likely to have anterior synechiae and other iris anomalies. Early onset arcus has been reported. Vision in mild cases may be as good as 20/25 or 20/30 but considerably worse in recessive cases with central opacification. Glaucoma may occur in older individuals. Systemic Features: None reported. GeneticsMultiple families in Finland have been reported with inheritance patterns suggesting autosomal recessive inheritance (CNA2). The gene has been mapped to chromosome 12 (12q21) in a region containing the KERA gene. A Cuban family with autosomal dominant cornea plana (CDA1) also yielded linkage to 12q where the recessive gene is located. However, this locus could be excluded in two Finnish families suggesting that at least 3 autosomal mutations may be responsible. Pedigree: Autosomal dominantAutosomal recessiveTreatmentTreatment Options: Correction of the hyperopia may be helpful. Patients need to be followed and treated for glaucoma if it develops. Outcomes of penetrating keratoplasty are not available but the procedure carries increased risk since the stroma is often thinner than normal. ReferencesArticle Title: Dominantly and recessively inherited cornea plan congenita map to the same small region of chromosome 12. Tahvanainen, E.; Villanueva, A. S.; Forsius, H.; Salo, P.; de la Chapelle, A. : Dominantly and recessively inherited cornea plana congenita map to the same small region of chromosome 12. Genome Res. 6: 249-254, 1996. PubMed ID: 8723718 The genetics of cornea plana congenita Tahvanainen, E.; Forsius, H.; Kolehmainen, J.; Damsten, M.; Fellman, J.; de la Chapelle, A. : The genetics of cornea plana congenita. J. Med. Genet. 33: 116-119, 1996. PubMed ID: 8929947 Mutations in KERA, encoding keratocan, cause cornea plana Pellegata, N. S.; Dieguez-Lucena, J. L.; Joensuu, T.; Lau, S.; Montgomery, K. T.; Krahe, R.; Kivela, T.; Kucherlapati, R.; Forsius, H.; de la Chapelle, A. : Mutations in KERA, encoding keratocan, cause cornea plana. Nature Genet. 25: 91-95, 2000. PubMed ID: 10802664 Read more about Cornea Plana
Dominantly and recessively inherited cornea plan congenita map to the same small region of chromosome 12. Tahvanainen, E.; Villanueva, A. S.; Forsius, H.; Salo, P.; de la Chapelle, A. : Dominantly and recessively inherited cornea plana congenita map to the same small region of chromosome 12. Genome Res. 6: 249-254, 1996. PubMed ID: 8723718
The genetics of cornea plana congenita Tahvanainen, E.; Forsius, H.; Kolehmainen, J.; Damsten, M.; Fellman, J.; de la Chapelle, A. : The genetics of cornea plana congenita. J. Med. Genet. 33: 116-119, 1996. PubMed ID: 8929947
Mutations in KERA, encoding keratocan, cause cornea plana Pellegata, N. S.; Dieguez-Lucena, J. L.; Joensuu, T.; Lau, S.; Montgomery, K. T.; Krahe, R.; Kivela, T.; Kucherlapati, R.; Forsius, H.; de la Chapelle, A. : Mutations in KERA, encoding keratocan, cause cornea plana. Nature Genet. 25: 91-95, 2000. PubMed ID: 10802664