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Neuhauser Syndrome

Neuhauser Syndrome

Patient Information

Characteristics

Background and History

This is one of a large number of eye malformations in which the cornea is abnormally shaped.  Unlike many others, though, this one has other significant facial and systemic features as well, especially mental retardation and seizures.

Clinical Correlations

The outstanding eye malformation in Neuhauser syndrome is that of an enlarged cornea, the clear front part of the eye.  The impact that this has on vision is difficult to assess since patients also often have significant psychomotor retardation and seizures.  Unusual facial features such as a low hairline, a broad root of the nose, prominent forehead, and downward slanting of the eyelid openings are often noted.  Systemic features include mental retardation, seizures, thyroid disease and decreased muscle tone.

Genetics

Inheritance

This is a relatively rare disorder and generally appears sporadically.  However, because families with multiple affected sibs have been reported and some parents are consanguineous, it is presumed to be inherited, most likely as an autosomal recessive disorder requiring two mutant genes, one from each parent.  In such families the risk for another affected child is 25 per cent.  No causative mutation has been reported.

Pedigree

Autosomal recessive

In order for autosomal recessive disorders to be expressed, offspring generally must inherit two mutations, one from each carrier parent.  Carriers with only one mutation, such as the parents, do not have clinical disease.  Note that carrier parents can expect that 1 in 4 children (25%) will inherit both mutations and have the disorder, 2 in 4 children (50%) will be carriers like their parents, while 1 in 4 children (25%) inherit neither mutation.

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Sample pedigree of autosomal recessive inheritance

In order for autosomal recessive disorders to be expressed, offspring generally must inherit two mutations, one from each carrier parent. Carriers with only one mutation, such as the parents, do not have clinical disease. Note that carrier parents can expect that 1 in 4 children (25%) will inherit both mutations and have the disorder, 2 in 4 children (50%) will be carriers like their parents, while 1 in 4 children (25%) inherit neither mutation.

Diagnosis and Prognosis

This is probably a stable condition although too few cases have been reported to be certain.  Diagnosis requires a multidisciplinary team.

Web Resources

Web Resource Printout Display
http://www.cornea.org/
http://www.aolhealth.com/conditions/megalocornea-mental-retardation-syndrome

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